Anxiety and Mental Health Accessibility

I wasn’t sure if I would write about this or not. I have shared many deeply personal and private things with my readers, but this is hard and humiliating and I’m not even sure why this is harder to share, but it is. So please be gentle.

I have anxiety so bad and have had it for so long that I didn’t even realize how anxious my baseline state is until the first time I smoked marijuana and experienced what it’s like to feel peaceful. My anxiety makes every day a struggle. Even my good days are riddled with anxiety. As I said, it is my baseline state.

I should add that therapy makes me more anxious. Every so often I struggle so much that I think about trying therapy again, despite knowing how hard it is on me. I get hopeful and decide to gamble on the off chance that this will be the time that I finally find a therapist who gets me and has the tools and training to make a difference in my life.

This morning was one of those times.

I saw a notice for a table at a local library branch. For two hours, a local “behavioral health” (that phrase is so creepy) organization would have a table available for people, “to learn more or to get information about ALL services [agency] offers.”

That sounded promising, so I went.

The entrance to the library was a sensory nightmare. I had to get past a food box hand-out at the door. I am glad someone was feeding people, but it made for a confusing sensory nightmare plus a big audience of strangers watching me trying to get information about a sensitive topic.

Inside, I struggled to make visual sense of the room. There was a table with a person at it, but no sign identifying who they were or why they were there. It used up just about my last drop of processing to get to the table.

So there I was, fidgeting, rocking, avoiding eye contact, having a really hard time of it and pretty sure it showed. “Is this the [agency] table?”

“Yes.” And they waited for me to say more.

“It said you would have information about your services?”

“What service do you need?”

Now … some of you are Autistic and some of you are parents to Autistics (and some of you are both.) So you know what I’m about to say.

I couldn’t make the words. And even if I could, I was not comfortable telling my troubles to a stranger in a very public setting.

I see now, at least somewhat, what they meant and what I was supposed to say, but in the moment, it was too much.

“What do you have?”

They rattled off a string of words faster than I could process them all– who knows? There might have been a better fit in there for me, but I managed to latch on to “mental health services.”

“Those. Mental health.”

They picked up a pamphlet, “you can call this number, and…”

“I don’t do phone,” I blurted. This should really be an expected response from someone with anxiety issues, right?

“Is there just a pamphlet I could read or something?” By now, I was hitting the end of my “spoons.”

They tried to hand me the same pamphlet. I looked at it. It was for alcoholics and addicts.

“I’m not an alcoholic,” I said, feeling lost and helpless and pretty certain the wizard had nothing in his black bag for me.

“Yes, but this phone number …”

I was sunk. It was back to the phone call. If I could have made a phone call, I would have done it already, not come to a table hoping to get information and answers about how [agency] might help me.

“Thank you,” and I took off out the door, double time, to go sit in my van where I shook and cried, getting myself together enough to drive away.

What was the point of putting someone on that table who didn’t know how to talk to anxious people and didn’t know how to educate a mental health care consumer about their options without being stressful and triggering?

How many anxious people are not getting helped because access to services is blocked by the lack of accommodation for the very issue that brings them seeking services in the first place?

I’m back to business as usual: coping with anxiety by hiding, leaving places, shaking and trembling, stimming, chewing on things, running away, having panic attacks, and smoking marijuana whenever I can afford it and get away with it (please bring medical marijuana to all fifty states! Better yet, bring medical marijuana *and* recreational marijuana so those who don’t have the money or coping skills to go through the medical system can still have safe, legal access to a medicine they know helps them.)

There is something really wrong when helping agencies become access barriers to the people who most need their services.

I tell myself it’s just as well: any agency that can’t even advise me without sending me into a panic is not going to be able to help me anyway. And therapy that is not helpful to me is often actively harmful to me.

But getting help with my anxiety was still a nice dream while it lasted.

My point here? If you are in a position to help or serve a vulnerable population, do your homework. Destroy the barriers your potential clients face in seeking your help. Be sensitive to the needs of your target population and don’t leave them high and dry because they are too anxious to make the right words and too put off by your continuing to offer things they’ve already made clear that they can’t access.

That’s all. Vulnerable populations trip over our own feet enough as it is. We don’t need to trip over yours, too.

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4 responses to this post.

  1. Posted by Aleda on May 5, 2016 at 7:03 pm

    Wow! You aren’t alone on this one & I’m glad I’m not the only one caught in this vicious circle. Yep, when you’re that distressed you need to get help. And yep, the system is so full of barriers there is no help available. If you’re lucky you can research your condition & provide some therapy for yourself. I’m working on the self-help now, the posts from people like yourself are of invaluable aid. Thanks.

  2. Posted by elizabeth on May 5, 2016 at 11:04 pm

    A loved one suffers accute anxiety. We managed to get to the doctor,who advised anti anxiety meds which he refused because he was frightened of being on meds. He asked for counselling and was given a phone number to call to be ‘screened’ for what type of support could be offered. It took everything he had to make that call. Trying to explain over the phone to a stranger that he needed help was so hard.He was offered a place on a group ‘stress management’ course at ‘some point in the future’. He can’t do groups. He asked for help and he didn’t get it. The effort he went to to try and get help and the effect his awful experience of this had on him was very nearly catastrophic.He uses marijuana to quieten his mind and body and I’m thankful that it helps him. Thankyou for this post, I can relate to it strongly,and I’m sure if he reads it , it will help him too.

  3. Posted by autisticaplanet on May 6, 2016 at 1:14 am

    I’m sorry you had to go through that. I don’t do phones for the most part, either. I have to meet with a therapist in a quiet area, and that is stated up front. I avoid those trigger places most of the time as my meltdowns hit suddenly and violently. I’m a screamer and hitter, not a crier (though I wish I was). Perhaps you can Google agencies in your area to see what’s available, but it might be hard moving around a lot.

  4. Posted by Katie on May 13, 2016 at 11:19 am

    great advice. And I love your last line so much!!!!

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